Multiple sclerosis (MS) remains a largely misunderstood and underreported condition in Nigeria, leaving many affected individuals without the necessary information and support. Nathalie Busari, the founder of The Nerve of My Multiple Sclerosis, is on a mission to change that narrative. During a recent media meeting in Lagos, Busari raised concerns over the lack of awareness and education about MS in the country.
The Urgent Need for MS Awareness in Nigeria
Busari, a survivor of MS herself, emphasized that many Nigerians remain uninformed about the condition, leading to misdiagnosis and delayed treatment. “We recognize that there isn’t much information available about multiple sclerosis in Nigeria, so we’re here to raise awareness,” she stated.
She further highlighted the importance of providing accessible resources for individuals experiencing symptoms or those already diagnosed but uncertain about their condition.
The Mission of The Nerve of My Multiple Sclerosis
As a non-profit organization, The Nerve of My Multiple Sclerosis is dedicated to supporting and advocating for people living with MS. The group aims to establish a strong presence in Nigeria before launching health summits and awareness programs to educate the public.
Busari described MS as a neurological disorder where the immune system mistakenly attacks the central nervous system, particularly the brain and spinal cord. This results in the formation of lesions that damage the protective covering around nerves, similar to an electrical wire losing its insulation.
Understanding Multiple Sclerosis and Its Symptoms
While MS is a progressive disease with no known cure, early diagnosis and proper treatment can slow its progression. Busari warned that without treatment, MS could lead to severe health complications over time.
She also dispelled the common misconception that MS only affects individuals over the age of 30. “Research now shows that MS can develop in much younger individuals, including children as young as two years old,” she said.
Addressing Cultural Misconceptions and Encouraging Medical Empowerment
Bamidele Busari, another member of the organization, stressed the need to educate both medical professionals and the general public about MS symptoms. He pointed out that misinterpretations of symptoms often lead to misdiagnosis. “Our beliefs influence how we interpret symptoms. Some people may attribute MS symptoms to other causes when, in reality, it is the body fighting itself,” he explained.
Oyefunso Orenuga, the Nigerian representative of The Nerve of My MS, highlighted how cultural and religious beliefs impact the understanding of MS. “In this country, we are very spiritual and religious. Many might say, ‘Ah, it’s a spiritual attack,’ instead of recognizing it as a medical condition. But the earlier it is diagnosed and treated, the better,” she said.
She also clarified that, unlike terminal illnesses such as cancer, MS is a manageable condition with proper treatment, allowing patients to lead long and fulfilling lives.
The Role of Government and Healthcare Policies
Another Nigerian representative of the organization, Mrs. Ibidunni Alakija-Ladapo, called for government intervention to make MS treatment more accessible. “The government should address multiple sclerosis on multiple levels. MS occurs when the immune system, which is supposed to protect the body, starts working against it,” she noted.
She urged policymakers to take inspiration from the strategies used to combat the HIV/AIDS crisis, including subsidizing treatment costs and increasing public awareness campaigns. “It is a long-term issue, and we expect government support, private sector involvement, and increased awareness across health institutions,” she added.
A Call to Action: Moving Forward with MS Awareness
The Nerve of My Multiple Sclerosis is actively working towards ensuring that MS patients in Nigeria receive the necessary support and education. Through awareness campaigns, educational summits, and collaborations with medical institutions, the organization hopes to create a more informed society that understands and effectively manages MS.
Raising awareness and debunking myths about MS in Nigeria is crucial to ensuring early detection and treatment. By fostering partnerships with the government, private sector, and healthcare professionals, The Nerve of My Multiple Sclerosis aims to make a lasting impact on the lives of those affected by the disease.
For more information or to support this initiative, visit The Nerve of My Multiple Sclerosis and join the movement to bring MS awareness to the forefront of Nigeria’s healthcare conversation.
